Riders For A Rare Disease
|Start Date:||Oct 12th, 2013|
|End Date:||Oct 12th, 2013|
|Address:||186 Passaic Street|
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|Description||Riders For A Rare Disease|
October 12 2013 --- October 13 rain date
Sponsored by Knights of Columbus---- Apple Bees Hooters ------- The Fire House Restaurant
Starting Line--- (registration) Apple Bees Restaurant (186 Passaic St. Garfield, NJ)
Finish Line ---- (BBQ Bash) American Legion (33 W. Passaic St. Rochelle Park, NJ)
$20 per Rider
$10 per passenger
$20 walk- ins BBQ Bash
Children 10 and under Free
The cost includes: coffee and at registration, a full police escorted ride, all you can eat food and non - alcoholic drinks at the BBQ, $10 all you can drink beer (wristbands sold with ID),children’s entertainment, vendors, live music by band Second Contact, photo ops with Hooters Girls, and more!
Registration starts at 8:30am
Ride leaves at 10:30am
BBQ Bash open to the public begins 12:00pm
All Proceeds will go to Jason and Justin Leider’s Trust Fund
Help Jason & Justin Have a Chance
Jason and Justin Leider of Elmwood Park NJ have been diagnosed with a RARE and FATAL genetic disease. Hunter Syndrome affects less than 350 children in the US. Sadly enough…the devastating effects of the disease will take control of their little lives resulting in their passing between 10 and 15 years. This disease literally eats away at all of their organs, muscles, joints, and brain, leaving them unable to walk, talk, and eat. Every week is spent receiving a 4-5 hour intravenous medication to help some organs from failing too soon; they go to countless doctor appointments, as well as have to travel to North Carolina every 3 months.
Please Help Jason and Justin have a chance.
Jason and Justin’s Journey was set up to support unexpected medical expenses, help these little boys enjoy life to the fullest, and help find a cure.
|Host:||Knights of Columbus, Apple Bees, Hooters|
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